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Introduction
The hemangioma and vascular
malformation program at the Institute of Reconstructive Plastic
Surgery at the NYU Medical Center emphasizes comprehensive, multidisciplinary
care. The team consists of specialists from Plastic Surgery, Dermatology,
Hematology, Neuroradiology, Nursing, Ophthalmology, Otolaryngology,
Pediatrics, Psychology, and Social Work.
What is a hemangioma?
What is a Vascular Malformation?
How common are hemangiomas and vascular malformations?
What is the difference between a hemangioma and vascular
malformation?
What are the different types of vascular malformations?
How are hemangiomas treated?
How are vascular malformations treated?
What should I do if my child has a hemangioma or vascular
malformation?
What other support is available?
What is a hemagioma?
A
hemangioma is a type of birthmark. The word is derived from "hemangio"
meaning blood vessel and "oma" meaning tumor. It is a benign growth.
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What is a vascular
malformation?
A vascular malformation is another type of birthmark
or congenital growth which is composed of blood vessels. There are
several different types of malformations and they are named according
to which type of blood vessel predominates. Hemangiomas and vascular
malformations behave differently and are treated differently. It
is important, therefore, for your doctors to make an accurate diagnosis.
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How common are hemangiomas
and vascular malformations?
Hemangiomas occur in 1% of newborns.
In premature babies the incidence is much higher, perhaps as high
as 25%. They are less common in black children. Vascular malformations
are less common than hemangiomas but, because there are so many
different types of vascular malformations, it is difficult to give
an accurate estimate of the incidence.
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What is the difference
between a hemangioma and a vascular malformation?
Although
we stated that hemangiomas are "birthmarks", the majority of hemangiomas
are not present at birth. If they are present at birth, frequently
the only evidence is a faint red mark. Shortly after birth they
grow rapidly, out of proportion to the growth of the child. They
then undergo a period of involution, during which they spontaneously
become smaller and lighter in color. This gradual process of involution
may take several years. Some hemangiomas disappear completely and
others undergo only a partial involution. Vascular malformations,
on the other hand, do not have a rapid growth phase and enlarge
proportionately with the growth of the child. They never regress
spontaneously and may become more apparent later in life.
| Hemangioma of the right cheek before and after spontaneous involution with no treatment |
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Age 1 1/2
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Age 4
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What are the different
types of vascular malformations?
As mentioned above, vascular
malformations are tremendously variable and are named for the type
of blood vessel that predominates, such as capillary malformations
(port-wine stains), venous malformations or lymphatic malformations.
Some malformations, such as port-wine stains, cause only a change
in skin color whereas other malformations are large, bulky growths
which can distort normal structures. The various types of malformations
have different characteristics, different growth pattems, different
associated problems and different treatments. Once again, this reinforces
the need to make an accurate diagnosis.
| Capillary malformation (Port-Wine Stain) treated with laser |
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Before Laser Treatment
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After Laser Treatment
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How are hemangiomas
treated?
In the majority of cases, no treatment is recommended
for hemangiomas and they are allowed to involute on their own. If
the lesions do not disappear completely or if they disappear but
leave scarring or redundant skin, surgical excision may be recommended
later in life. Early medical and surgical intervention for hemangiomas
is generally reserved for those rare hemangiomas which cause uncontrollable
bleeding, growth disturbances, or impairment of vital functions
such as vision, feeding or breathing. In such cases, treatment may
consist of steroid medications, embolization (injection of material
into the blood vessels to occlude the blood inflow) or surgical
excision. Newer medications such as interferon are currently being
investigated and show promise in the treatment of complicated hemangiomas.
| Hemangioma of the face |
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Age 3 months
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Age 5 after treatment with steroids followed by a perios of involution and finally surgical revision
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How are vascular
malformations treated?
As stated above, each type of malformation
is treated differently. Capillary malformations (port-wine stains),
which tend to be flat red patches on the face, are usually treated
by laser. Lymphatic malformations are most often treated surgically.
Venous malformations are usually best treated by direct injection
with a sclerosing agent which causes clotting of the venous channels
in the malformation or with a combination of direct injection and
surgery. Arterial malformations are best treated by embolization,
in which material is injected under X-ray control into a normal
artery in the vicinity of the lesion in order to block the inflow
of blood into the malformation. Since malformations frequently occur
as combined lesions consisting of more than one type of blood vessel,
more than one type of treatment may be necessary (e.g. embolization
followed by surgery).
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Venous malformations of face and lip
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Prior to Treatment
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After Treatment With Direct Injection of
Lower Lip, Surgical Revision and Application of Makeup
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What should I do
if my child has a hemangioma or vascular malformation?
It
is best to have the child evaluated by a multi-disciplinary team
of medical specialists experienced in the management of children
with hemangiomas and vascular malformations. Frequently it is difficult
to differentiate between the various types of hemangiomas and vdscular
malformations, making it especially important that an experienced
team be involved. Because these growths can involve the eye, brain,
respiratory tract and other organs besides just the skin, no single
medical specialist is capable of caring for every aspect of these
complex cases. The team includes dermatologists, nurses, ophthalmologists,
otolaryngologists, pediatricians, plastic surgeons, psychologists,
radiologists, social workers, and occasionally other specialists
depending on what organs are involved.
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What other support
is available?
It is often difficult for parents to deal with
their own responses to their child's condition, in addition to the
responses of other people. Forward Face (800-422-FACE), founded
at the Institute of Reconstructive Plastic Surgery, is a self-help
group consisting of patients and families affected with facial birth
defects and is a helpful resource for families with these concerns.
Hemangioma Hope (814-898-1054) is another self-help group, that
was started by Cindy Dougan who has a child with a hemangtoma treated
at the Institute.
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